The avoidable cause
I will try to explain what happened to my daughter. She was born with a condition called reflux, this is quite common in young children, and is easily corrected with minor surgery, if detected in time. For her first 6 years of life, we spent a lot of time in the hospital, and in the doctor's office, because of bladder infections and high fevers. She was usually sent home with antibiotics, until the next occurance. The doctors paid no attention to me when I said that I thought it may be something more serious. She was finally diagnosed in Europe, and had her surgery shortly after. We were told that she had some scarring on her kidneys due to repeated infections, but that they would regenerate themselves. We did not think anything about it, until Nov/2005, when she was diagnosed with end stage renal failure. Her diagnosis came about by a fluke. She went to her doctor because the pattern of her migraines had changed. The doctor ordered a cat-scan of her head. From the beginning of 2005, the radiology department demanded a blood test to check the creatinin levels, as the dye they inject can be fatal for someone with kidney disease. That is how we found out that Sandra's kidney functions were only at 13%, they are now down to 10%. The doctor told her that her only chance to a normal life is a kidney transplant. While waiting, she needs to be on dialysis. It takes time to prepare someone for dialysis. To give you an idea, check the links on this blog about hemodialysis, and peritoneal dialysis. They prepared her access for hemodialysis through surgery 3 months ago. However, two days ago it stopped working. She is now in training, at the hospital, for peritoneal. I will be with her in the hospital all of next week, because someone else needs to be trained as well.I am telling you, she is going through hell right now. I think this will be enough for you to read for now. I will continue to post often, to keep you up to date. Christina
1 Comments:
My wife lost her kidney's to reflux in 1994. Since then she has had 3 transplants. Her last transplant was rejected in May 2007. Currently we are doing home hemo with the NxStage System One and she is 20 weeks pregnant! You can read her story on the ihatedialysis.com forum. Her username is jdhartzog.
Post a Comment
<< Home