It has been a long time

It has been a while since an update. My last post was about being hooked up to a machine. Well, Sandra choose to go off the machine because it caused her to wake up in severe pain every time it was draining. It continued to drain even though there was nothing left. They tried to adjust it without any success, so she finally gave up, and is now back on manual pd. In many ways it is a great relief, because in addition to the pain, she was stuck to the machine for ten hours every night. Which meant that she would either have to go to bed and hook up very early every evening, or she had to stay in bed to late in the morning. Sandra feels she has more control with the manual, even if she has to do four exchanges per day. The machine sounded like the perfect alternative at first, but sadly it did not turn out that way. We have not heard anything in regards to potential donors lately. Oh, how I wish there was a perfect match out there somewhere. In the ten months since the diagnosis, there has been a big change. Sandra no longer fit into any of her clothes, and short of maternity wear, nothing will fit around her belly anymore. She can't carry anymore than five pounds at a time, she can't stand long enough to cook a meal, or wash dishes. It's fortunate that I work nights, with the days free, so I can help her with those things. However, Sandra is still healthy enough to be able to handle surgery if a kidney would become available now, but if she gets any sicker, she will be taken off the list until she gets better.