The Disease Is Taking Its Toll

I have been so busy trying to advocate for Sandra, that I have not allowed the full impact of her disease to grab hold of me. Whenever I start getting depressed I try to do something to make it easier for Sandra. However, sometimes it is very hard. Especially when I see how desperately she tries to not have her disease have an impact on her daughter's life. Sandra used to be the mother who always volunteered to drive/pick up Kylie and her friends to, and from different functions, and there have always been a lot of friends in their home. Now, Sandra often have to say no, as the illness is taking its toll. Last night I cried myself to sleep. Sandra has to fill out some forms explaining the things she has had to give up due to her illness, and she asked me to help her with it. It broke my heart to actually sit down and remember all the things she used to be able to do without it exhausting her. The main change is of course, that she can no longer work. However there are so many other things, including ordinary household chores, socializing with friends....she used to love dancing for example. Everyone could always count on her to fix any computer problem they might have, but now she can only sit by the computer for short periods at a time. When it comes right down to it, her whole life has changed. It is all so unfair. But then, for whom would it be fair? I know of a little four year old girl who is going through this, and my heart goes out to her and her family. I wish I could be more positive, however, this is reality.